An Open letter to a Doctor/Specialist or Health Oldie but new to my Blog

Dear Doctor


I am dropping you a line to let you know a few things about me. I am not a nameless patient. I have LUPUS, but I am not LUPUS.  I am an individual . Please do not roll your eyes and give me that “here we go again’ look. Try getting to know me. You might learn something.


Please do not give then take away my Lupus diagnosis without looking carefully at the history. One spotty young interns comments do not a diagnosis take away. Oh and NEVER say to a patient, “Well you have something Auto Immune going on but we don’t know what, come back if you feel worse.”.. SO  do some investigations already..MORON. I have LUPUS.


Please do not trivialise my symptoms without investigating them. That WILL come back to bite you AND me in the arse..I have LUPUS, the Great Imitator.


Please do not poo poo my comments,  opinions, and remarks. I HAVE been right, OFTEN! It WAS  hereditary demyelinating Neuropathy with LUPUS CNS Involvement. Sometimes the informed patient DOES know better than the doctor. I have LUPUS but I have to research because YOU won’t.

Please do not presume I am making up my symptoms just because they are not present at examination. I AM keeping photos and a diary now!!! HA!! I have LUPUS..things come and go..


Please do not feel it is necessary to inflict maximum pain in a procedure like an EMG just because you can. The test results are the same with smaller currents. It measures the speed of transmission NOT the sadistic henna-ed frizzy  headed hag. I really DID NOT enjoy having muscle spasms in my legs for the next 4 days. I have lodged a complaint. Oh and please learn some bedside manners. A smile WON’T crack your face. Oh and shave your pits or learn about d-e-o-d-o-r-a-n-t. I have LUPUS, I am NOT a lab rat.


Please take note of my comments about drawing blood. I’ve probably had more blood drawn than you’ve EVER seen you snotty nosed pimple faced geek. I have LUPUS you FOOL!


Please do not gloss over my questions or ignore them. I am a “need to know “person and I have the right to understand what you are are saying. I have LUPUS, if you don’t know about it I have to!


And Doc, If I present at your office and say I need help NOW, I am right..I am strong but I have LUPUS, I know my body, my disease and my capacity for recovery . I am not a NUT, a hypochondriac, a schizophrenic OR a fool. I have LUPUS.

In closing Doc, thanks for all anguish, the tears, the frustration, the self doubt and the grief. I have LUPUS. Listen, learn, educate, and support. It’s not hard.




The Crazy Old Lupie  who helps put your kids through private school and University.



3 Comments (+add yours?)

  1. trainwest123
    Dec 02, 2011 @ 18:23:17

    Hey I just wanted to say that I really enjoyed reading your blog. You have good views, Keep up the good informative info. For more information you can visit ou website Certificate IV Occupational Health and Safety


  2. Beverly
    Dec 10, 2011 @ 08:45:03

    LOVED this note. I could so identify with your feelings and frustrations, having experienced them myself so many times in the past – and even this week with my current rheumatologist! This stuff just makes dealing with these illnesses and symptoms so much more difficult. Since the docs and so-called professionals don’t seem to get it, I guess our best resource is one another. Hang in there and good luck from another person who’s been there.


  3. Iris Carden
    May 14, 2015 @ 18:00:55

    Oh, that is so familiar.


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